Tutorial Six-The Internet and Online Communities

In this post I am going to provide an overview of three online communities I have found that relate to my topic of Autism. These online communities provide support for those with Autism and most importantly the families and support systems of these people.

 The first online community is an Autism Support Group that is dedicated to family members and friends dealing with Autism. It is a community where family members and friends can come together to give advice, share information and ask each other questions about Autism. The online community offers many ways of interacting and sharing knowledge with others who are dealing with the same or similar issues. It is a chance to share with others who are in the same situation as you and who can understand you.

 Within this community you are able to post comments on the discussion forum. You are then able to comment on each other’s posts to give advice or answer questions. This is the way in which everyone is able to interact with each other. The site also offers articles and videos on autism to be uploaded by members to promote awareness and help build on peoples knowledge. I liked this community page as it’s easy to navigate around and anyone is welcome to join. It is easy to join and contribute to the page. The community is seeking to join family members and friends affected by autism together so that they have support and can share similar thoughts and experiences.

 Link to this community: http://www.mdjunction.com/autism

The next online community I found was Altogether Autism. This website is for people with Autism Spectrum Disorders, families and whanau, friends of people with Autism Spectrum Disorders and anyone in the community who wants to know more. The websites main purpose is to inform you about the services available for people with Autism Spectrum Disorders, people who can give you advice and where you can find more information. It is different from the online community above as it is not in a set out where there is a forum in which you can share ideas. It however is a place for people to go to find out more information. The site offer you links in which you can explore to find out organisations and individuals who provide a range of services which may support people with ASD. The site has articles in which you are able to read. It has a section on questions people ask that you  are able to click onto and find out the answers. The site enables you to be up-to-date with news and events and you are able to subscribe to their news letter. I think this online community is a great base for those who have autism or know someone with Autism to look at. From here they are pointed in the right direction to finding out services available, new and events and information about the disorder. People are unable to contribute information themselves unlike the majority of online communities however I feel this is still a great online community that holds alot vital information.

Link to this Community: http://www.altogetherautism.org.nz/page/79-welcome+questions-people-ask

The next online community I came across was AutismSpot-Empowering the Autism Community. This blog site is dedicated to providing parents, educators, professionals and those living with Autism with unbiased, comprehensive information. The purpose of this community is to provide information on the best practices, therapies, education opportunities, resources and home programs from people all over the world. It is a place to seek information and offer support to others by building a community that brings hope through expert advice. The site offers videos, news, blogs and forums. Once you become a member you are able to post discussions onto the forum and comment on other posts as well. This is the way in which people are able to communicate to share their knowledge, experience and personal stories. Communication through these forums is the foundation to building an online community like AutismSpot.

 Link to this Community: http://www.autismspot.com/

 Ethical Issues to consider:

When being a part of an online community like the ones I described there are ethical issue that may arise. Informed consent and copyright are two of the ethical issues involved in online communities. As people are able to openly discuss issues on these forums it is important that they have gained informed consent from the person in which they are sharing information about. When capturing and sharing photos of those with autism it is vital that informed consent has been given first by the person and their families. The second community I discussed was Altogether Autism, as this site does not enable people to openly make posts on it, the information they provide has been copyrighted. It is important when using information that is taken straight from the website that it is properly referenced. This will stop any copyright ethical issues that may arise.

 The benefits of the online communities; AustimSpot and the Autism Support group include:

-People are able to interact with each other building a sense of community
-People are able to share personal experiences and relate to each other
-People are able to give advice and answer each other’s questions
-You are able to post questions of concerns in which people in similar situations are able to answer.

 The benefits of all three communities I have discussed include:

-They are places in which people can seek information about Autism to build their knowledge and understanding.
-They are base in which people can go to find links and resources that they can then explore
- You are able to learn from others in similar situations who understand what you are going through
-Can be accessed at all times

 Limitations for online communities include:

-People who are unable to access a computer will be unable to be a part of these communities
-People who do not have knowledge on blogging and posting comments may find it difficult in doing so
-People may comment negatively on the online blog and abuse the privileges of the online community

Tutorial Seven: Linking to blogs of interest

I have chosen to link to different blogs that relate to Occupational Therapy practise.  I have set up links on the side of my blog which are easy to locate and click into. Within this list of links there are blogs from other class mates of mine. As I use my blog more and begin to explore different blogs I will add them to the list. I have posted comments on the blogs when I have found posts of interest. I have made comments in which I am hoping to receive feedback from the blogger or others reading the blog.

Below I have provided an example of the communication between myself and an another blogger whose post I have commented on:

Sophieh17 May 2012 15:32

Hi Jess,
Your placement experience sounds very interesting and sounds like in the end it was very worthwhile.At your placement were there other clients with TBI?? or was it a range of different injuries? I really enjoyed your selection of videos from YouTube that explain brain injuries and demonstrate the occupational therapist role in the rehab process. As an up an coming OT its interesting to see the role of the OT in different settings. Thanks for sharing these videos.
Sophie

Jessicaboyce-PO117 May 2012 19:51

Hey Soph,
Yes my placement was very worth while in the end. I mainly worked with a young boy that had a TBI however there were other service users that had TBI's aswell. There were also many service users with disease's such as MS. There were individuals that also had a range of injuries and disabilities. These were physical disabilities. Hopefully my feedback helps.
Jessica

Tutorial Five: Video Production Part Two

Autism is topic within the Occupational Therapy practise area and is a topic of interest for me. I have worked with a child with Autism at a holiday program and I found the experience to be fascinating. I am really looking forward to working with children with Autism in future placements or future practise. I have chosen five videos about Autism that I found very interesting. I chose 5 very different videos so that those reading could expand their knowledge base about Autism and gain a better understanding. These videos help explain, demonstrate and provide personal experience of Autism.

I found this first video to be very moving and captivating. It is called "fixing" Autism and is made by this man in honour of his daughter how has Autism. It demonstrates not only the struggles she goes through but the struggles they go through as a family. I think this is a great video for informing people about the reality of Autism for the person and their families. It is a great video for Autism awareness. I think anybody who watches it would be affected by this man and what he has to say.

http://www.youtube.com/watch?v=z2B1FeS5VX4

The next video is from the perspective of different people with Autism. It has been made in honour of Autism Awareness month and its main focus is for these people to let the world know what it’s like to have Autism. It shows a range of different people who are all different on the Autism spectrum. It is their way of reaching out and telling the world what life is like for them.

http://www.youtube.com/watch?v=ZfzqBCC30as
This next video is the day in the life of Ryan. Ryan was diagnosed with Autism at the age of 2. This video is made by his older sister how explains common signs and symptoms, the visible signs he showed and the frustrations in which a child with Autism can experience. We are able to see Ryan and the way in which he communicates and acts. She explains the challenges for living with someone with Autism and the effects it has on her younger sister who is also interviewed by her.

http://www.youtube.com/watch?v=filK9gZw4rA
This video shows an Occupational Therapist working with a young boy with Autism. It shows them working with an Ipad learning to draw letters. I chose this video as it shows a type of intervention in which an Occupational Therapist like me would do with a client with Autism.

http://www.youtube.com/watch?v=Qh20EtuitHw
 

This video explains the various types of therapy that can improve a person’s social and communication skills and improve developmental growth. It names the different types of theories then explains them. This gives therapists and insight into effective therapies to use with clients with Autism.  

http://www.youtube.com/watch?v=PMyPLu1XY_s